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View My Stats From Bath to Cork with Baby Grace :: January :: 2009
Depression & Health, Work & Play, Blogging & MediaJanuary 24, 2009 9:39 pm

Before the NSUE Conference started I went walking round the huge room in the hotel, visiting the stalls.

This is what I found…

(1) First Employment Services (FES)

FAS funded.  Work for a minumum of 8 hours per week.  Their web site is under review.

(2) Mindfreedom  Ireland

The Cork branch of a national organisation.  Meetings: Douglas Support Group on Wednesdays from 3-5pm.  Informal.  Membership is free.  They accept donations.

(3) The Social & Health Education Project

Started giving core training for teachers.  Now give core training for all, organisational development, therapeutic support. They provide a counselling service in Cork & Kerry.  Contact phone numbers : 021 4666180 & 087 7998602. Pat McCarthy runs this.  They match people who want counselling to counsellors.  You can pay what you can afford.

(4) Health Active Zone (HAZ)

HSE funded.  North Lea: Mayfield, Churchfield, Knocknaheeny, Glen. They have a community health worker and take health focussed initiatives "to improve the health and lifestyle of the HAZ communities…"

(5) Nicholas Duranton Photographer

Planning an exhibition in collaboration with Amnesty International in Cork, probably in 2010, called ‘Traces of Humanity’

(6) Schizophrenia Ireland 

(7) Cork Local Drugs Task Force

(8) National Service Users Executive (NSUE)

(9) Irish Association of Supported Education (IASE)

A man from Limerick promoting partnership in supported education

(10) Amnesty International

Part of the Irish Mental Health Coalition (IMHC)  This is the one I want to find out more about…

Depression & Health, Work & Play, Blogging & Media 6:49 pm

At the NSUE Conference my laptop battery ran out.  That’s why I stopped putting up posts.

I switched to the old quill pen and wrote copious notes which I’ll precis and add later.

Meanwhile, here’s a list of most of the individuals I was fortunate to meet and speak with, in more or less chronological order (I also visited many stands and gathered intelligence which I’ll summarise too):

Mick Riordan (giving out participant packs)

Brid Ni Luasaigh (freelance photographer)

Sean O H-Eigeartaigh (director, National Economic and Social Forum)

Charlotte Frorath (NSUE, service user co-opted to executive in November 2008)

John Redican (NSUE, newly appointed chief executive)

John Moloney (minister of state @ department of health and children)

Tony Leahy (HSE - who chaired the conference)

Bill Luttrell

Ronan Browne (chair of GROW)

Kevin Foley (service user)

Jenny Kelly (chair of NSUE & founder of Bodywhys)

Cathail Shanahan

Elizabeth (NSUE)

Rosemary Dickson (Amnesty International I think)

John Kidney (service user, Schitzophrenia Ireland)

Lydia Watilda (Mind Freedom Ireland & poet)

John McCarthy (independent, service user)

Mary Maddock (service user and co-author of "Soul Survivor a personal encounter with psychiatry"

Depression & Health, Work & Play, Blogging & Media 1:01 pm

This is what I wrote at the AM questions and answers session of the HSUE Conference

Questions asked and contributions made (a summary as it went along):

(1) Change of name from S Ireland to Shine, why?

(2) John McCarthy, Mad Pride: a few things I’d like to say…  people here on their day off…false premise… Mental Health Act 2001 definition we are in the wrong place… my condition… all finters back to the fear and stigma issues about capacity… we need to alter the false premise… and take a lead in it.

best minister I’ve come across ever…. elephant in the room… psychothropic drugs…. increase problems harmful and adverse effect… need to challenge the drugs… they are trying to do things to our children…

(3) Power: 

(4) Kieran McNulty:  Tralee - involved in implementation of Vision for Change, with psychiatrist, occupational therapist, psychiatric nurse… go to be listened to by them… good ideas like development of community mental health team but it’s all down to the budget… a tragedy… so little given to mental health…. Vision for Change will not be implemented in the time frame unless the money is put behind it…

Panel respond: 

John Redican says if you don’t agree with the change rate you need to campaign with others… go to general meetings..I can speak to you afterwards about this…  John McCarthy is right about drugs.. WhO says the side effects is the 4th largest cause of death.  70% of admissions are  re-admission… (like the prisons say I)

Bairbre says:  W debated every line of Vision for Change  - medical model versus the psycho-social model.  Very difficult.  I learned we had to bring everybody with us.  if we split the consultant psychiatrists would not have been on board.  Bi0-psycho-social model we came up with this.  Most medics would agree that medication should not be the first interviention.  We need to bring the medics with us.  How all the scientific results show that if you praise people you get the best results….

Encourage their peers…

Minister replies: funding - I’m glad you asked that question.  This is not all about money.  V for C is a 10 year programme… if we wait for the money to be handed…. V is the roadmap…  the main focus is to bring about that V.  On funding, on Monday, not just about what’s been achieved.  We’ll outline how we’re going to achieve V for C.  Whoever’s in this department will find V for C stitched in.  Asset values less than 1m euros… community mental health teams …. net savings…. I’ve said to the leaders that its up to us on a 3 monthly basis… encouraging PNA and Sibtu to join with us in changing…

we  take each year as it comes…. Drop in centres in Galway I dropped in and thought if we could encompass like they’re doing in Galway, the Jigsaw, advice for all aspects of life.

try to believe… whatever is secured by the sale of assets will  go into the mental health area.  The praise for the 20 million : the officials in the dept sought the funding.  This is the challenge I face.

(5) How strong minister is your deliberative process?

(6)  A man tells his story now… I used to be a happy boy… how come 26,

(7) I put my point to the panel: why only 45 minutes given to service users on the agenda today.  I have spoken and my hands are still shaking.  it was wonderful to be clapped.  I have challenged for an answer about the design of the conference.  I have offered John Redican help with social networking…

(8)  A woman speaks of not being an expert but of being well informed. She speaks up for the knowledge that users hold about their condition…

(9)  A man pleads for people to reach out to others, with passion…

(10) Health commission for last 12 months: the mental health commission is outside the ombutsman’s office a man asks in a challenging voice.

(11) A woman speaks from mindfulness ireland… recieve drugs against our expressed will..we don’t think  we should force our will on you… many of us have been forced to recieve drugs against our will… you have to listen to us… psychiatrists have to listen to us….

(12)  A man on changing the mindset… what are professionals going to do.

(13)  Social science student from UCC why can’t people access counselling without going private?

(14)  Woman with an american accent… ect… against human rights… don’t say please don’t do that, say you can’t do that, overprescribed medication and ect should be a criminal act.  we need to know the money from th3e sale of assets must not be spent on the4 day to day running of tired old services.  Cathy Sinnot that was…

(15) Philip Collins from the Basement club in COrk… the heroics of those who brought us here today… the people in the government who backed this new plan…. I never thought this would happen… I’d like to applaud from the bottom of my heart.  In west cork we had no where to go… 1 in 4 people suffer with mental illness in Irleland  No one speaking up for old people drugged up to the eyeballs… There should be a major social centre… over in England they have it…  There is a sceptical attitude to drugs, need an independent body nothing to do with pharmapseudical companies… some information…

Panel response:

Minister first… I have put out the message that rather than chasing ministers, we’ll meet on a 3 monthly basis… youth services too… representatives of all involved… will the annual audit involve the users?  Yes.  People from this organisation will be participating.  12 land banks to be announced:  V is the way forward… assets money will go to implement the Vision.  People should have the right to have someone accompany them to tribunals.  I’m here to ensure users believe they will be involved.  People with disabilities into the workforce… Press conference at end Feb on the disability side… inducement and encouragements for employers….  most important is : all will be checked on a quarterly basis.

John Radican:  tablets for children… we have a mental illness system.. we need to promote a positive mental health…  this was a launch… feedback sheet there…anything we could have done beter… I’d love to learn about blogging…

Wow… I’ll see him at lunch about this…

Time to stop forcing people into treatment… time to put principles into practice

 

Depression & Health, Work & Play 12:14 pm

At the NSUE Conference @ about 1150 Tony Blackmore presenting "Every Mother’s Son"….

Tony on his own experience… before publication

confusion…. son happy and loyal… things began to change… bewinderment… school difficulties.. angry tirades…. efforts to get help for son… GP, counselling… jobs & other children… false turns…. Rutland Treatment Centre @ 18… no breakthrough… left home… he tried …. hospitalisations… waiting in A&E units… self conscious and embarrassed at first… looking for info and care plans…. 18 years son… diagnosis… 10 minutes with psychiatrist… son suffering with schitzophrenia… I try to avoid using schitz… label him… after years…  no support and little info available to us.. we realised we were alone…

son came to understand his illness… acceptance compassion and commitment…. maze of mental illness… we are learning to distinguish between the illness and our unique loving son….

i live in my mind like my son… few friends.. goals he won’t achieve without professional help… little help… sad I can’t do more to help him… even a sunday job… his fierce desire to get a job… a local authority place to live… huge increase in his self esteeem.   I struggle with my own anger at the lack of care… the failure to include carers in the system…

a major breakthrough when we contacted S.Ireland.  a ray of hope… waterford carers group… great support from other carers.. we were not alone… not the only ones going over the past trying to see where we had gone wrong…. a wealth of expericne and advice…

key findings in our report every motherr’s son:  first written from carer’s perspective

because we felt the need for greater involvement  invitation from John Redican to explore the issues in advocacy.. outcome of our advocacy training…  research team designed a questionnaire… interviewed parents confidentially…

seeking a better standard of care…

key finding: the information deficit for carers and family….  was this explained to you in terms you could understand?  No by most.  Given information: No in huge numbers.  INformation giving is support and almost cost neutral… 79% about the complaints system…. afraid to critisise…

housing the second highest concern….

emotional  well being at risk… I have ended up using the services myself

This man knows what he’s talking about.  I guess there are many "service users" who need a carer to be their advocate.  The carer is what others have within themselves: some outsource their advocacy…

I remember needing someone to come to the psychiatrist with me, how I was reluctant to bring the Wiffe with me, how hard I found that going into a room and knowing I would  not advocate for myself.  I would not engage vigorously with the psychiatrist.  I knew I would have benefitted from having the wiffe with me, but that time that was a step too far…  In future, using my rrelapse prevention plan I well take help with me, another pair of ears, another mouth… so needed when I’m severely depressed.  Maybe I could become an advocate for someone else.  When I’m well, I’m a good advocate… I could use those skills…. must come back to this…

I’ve taken a few copies of Every Mother’s Son summary report from Waterford Parents and Carers Research and Advocacy Project.  Someone at Aware might like to read it.  I’ll read it at home.  It’s very well produced with a great photograph of the sun coming through trees and around the trunk of the tree.

He’s finishing now…  Join with us now… I know the minister is going to achieve objectives.  he will…

Depression & Health, Work & Play 11:12 am

At NSUE Conference, 1055, John Redican and Jenny Kelly presenting…

Lovely -  a double act: one speaks, then the other comes in after a paragraph…

They’re talking about the pace of change and thanking the HSE for taking things so slowly… That got a laugh and a clap and the irony of it.

They’re saying the journey is the thing, not about arriving…

Badly cut hair is two men’s shame how can I go out into the community looking like this…

Speak up

The doctors were very brave about my illness  Dorothy Parker

If we don’t understand a person how can we trust them?

Trust must be at the heart 

Mental illness can alarm other people… those who know best about themselves and their diagnosis are those who have the illness…

the best plans have always been wrecked by the narrow mindedness of those who should carry them out   Bertholdt Brecht

Attitudes cost nothing to change…

Opportunity in this recession… to make more from what we have

Elections coming up:  we’ll be informing 2 meetings where all candidates about to meet the electorate

important that people have a say… we want this organisation to belong to the  members.  elect the people who are going to meet the HSE  I hope this’ll be a positive learning experience.  We’ve make mistakes.

Stress anxiety is part of being human.  we learn best by making mistakes… want the widest possible viewpoints….

so that people who come into contact with the service will set the agenda..

I wasn’t always well… time future was very bleak… on the corridors of pain… viewed dark lonely places…

have attempted suicide.. time nothing worthwhile about mylife and  my self.  I was lucky people who held a mixture of hope health held it for me until I was ready to receive it aganin

my mum my sister.. that’s why it’s important to have this partnership between service users and those who care for them…

my daughter… one of the most important thing was for me to hold that hope… a bond giving and recieving mutual respenct…  when people talk walk or journey toget her they are far more powerful that when they move alone

Thanking people for coming..

Depression & Health, Work & Play 10:54 am

 

At NSUE Conference,

Great start.  Great minister (John Moloney, minister of state @ department of health and children): convincing, genuine… so restoring of faith in FF.

Very dynamic woman Bairbre Nic Aongusa, director of the office of mental health and disability, in the department of health and children, who’s leading the Office of Mental Health and Disability.

Hall about 1/3 full but lots of stalls round the room.

I’m making lots of notes: it’s like being on a degree course on mental health on one day.

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